Thirty Eight and the Bad News

A couple of weeks ago I had a routine eye appointment and got some bad news about my eyes. I have serious signs of dry, macular degeneration in both eyes. Macular degeneration . . . sucks. I am way too young for it and have none of the risk factors, but the bottom line is, it’s likely I’ll be legally blind within 10 years. There is no cure or real treatment and no way to know how fast or slow it will go, just diet adjustments and vitamins that can sometimes slow the progression.

This news was overwhelming. I had and still have moments of suffocating anxiety about losing my independence and not being able to fully take care of my children/keep them safe. I am sometimes crushed under the weight of the knowledge that a day will come when I’m not able to clearly see their faces as they grow into adults, not able to see my daughter’s art, and not able to read or knit or drive . . .

Along with those dark thoughts, I’ve also noticed that every vein on every leaf, every grit in the cement sidewalk, every facet of the frost on every blade of grass, every hair on my horses, every minute detail of my surroundings has become a tiny miracle to me. I don’t try to see every little thing, but since that appointment, I just do.

The week before last was hard. I wasn’t hungry, I wanted to cry all the time, everyone was sick, and in the midst of the bare minimum I had to do to keep everyone alive and clean and fed, I had to plow through having the future I’ve always imagined would be mine ripped away in an instant and try to wrap my mind around what’s coming instead. To stay sane, I found myself mentally putting things in categories as I moved through my day: “Things I can Still do Once I lose my Central Vision, Things I can’t Do Anymore Once I Lose my Central Vision, and Things I can Still do with Some Form of Help Once I Lose my Central Vision.” I imagined how things will need to be moved around so I can do as much as possible for as long as possible. I set a schedule of never pausing during the day (lest I not be able to get back up and continue) and breaking down at night after everyone was in bed, and quickly exhausted myself on every level.

But this past week, after forcing a few good night’s sleeps on myself and while deep breathing through a mini-panic attack about it all, the realization came that right now I’m in the early stage and my vision is still correctable to 20/20. I can still do and see all the things. No doubt, there are dark days ahead, but now is not the time to grieve, now is the time to savor.

Going with my man for his first flying lesson and watching his eyes light up with pure, unadulterated glee when he turned the key and the engine fired up, taking my little horse for some play time in the round pen, making time to get back to my (rather long) reading list, and soaking up the sight of my children in a way I don’t think I could have when I assumed my vision would always be clear: these are the things I am focusing on (literally and figuratively, lol) now.

I’m not quite to the end of my thirties yet, but I think they’ve been about learning how to live on even when the living gets tough. Not to just keep breathing and eating, but to keep living–cherishing, enjoying, hoping, and holding my heart open even when it hurts.

When I started this decade, my initial response to pain of any kind was to close off and do everything in my power to not feel that pain again. But now I’m eight years in and it’s become pretty clear that if I keep that up, I’ll end up living alone in my bedroom under the covers for the rest of my life. This past week, I feel like I’ve cracked an incredible cheat-code for life–how to choose to truly live in the moment.

I want to close this with two things:

One, living in the moment is not natural. We worry about the future because we are aware that if we don’t make good decisions in the present, our future might suck or just plain never happen. Living in the moment is a skill to be honed, not just how to get in the moment and stay there awhile, but when to live in the moment at all.

It’s important to take precious time and allow yourself to project possible futures, sift through information that might shift your course for the better, or close your eyes for a visit to the past to avoid repeating mistakes. For me, especially right now, I know that if I’m ever going to make it to acceptance of this situation, I have to stop savoring the moment sometimes and let the full weight of the fear, anger, sadness, and inevitability of it all move through me. If I don’t, they’ll steal my joy slowly but surely from the inside. Still, this isn’t something I intuitively know how to do, I’m figuring it out as I go and practicing.

Two, I’m okay. Obviously, this isn’t how I wanted life to go, but it would take so much more than this to ruin it. I have too many good people, too many good animals, too much love, too much humor, and too much to look forward to (whether I get to actually see it or not) for this to keep me down.

So here’s to 38–letting go of what was, savoring and accepting what is, and setting course for a beautiful what will be.

The Lipstick Letters

it has something to do with how my thoughts go from
pouring to spilling
when I’ve had too much wine–
spreading across the page
and leaving a stain
no matter how I try to clean them up later.

It’s about the tangle of worries in my head
thorns that grab at my arms and legs
painfully holding me back
slowing me down . . .

It’s about realizing the tangles are all just me
the thorns are my own thoughts
so why can’t I just free myself?

It’s about how nothing helpful ever follows the phrase
“why can’t you just?”

It has something to do with wearing these words on my lips
and glossing over their lack in my life

My life is lacking something
I’m going to go get
as soon as I figure out what it is . . .

It’s about having to start here
among the thorns
when I thought I’d already have made it
to the mountaintop.



Keep Going

It hit yesterday. I’ve been waiting because it always does, I just never know when. It started when I woke up and went to write. I’ve been getting up around 5am to write in the mornings because it’s the only quiet time I have until after the kids are in bed for the night. And, by then, my brain might as well be scrambled eggs.

I was sitting on the couch trying to get a thought out just the way I wanted it and I was really struggling. I kept thinking no one is going to like this and I’m doing such a poor job getting it down that they probably won’t even understand it. Then these words whispered through my brain,

“Just quit. You can’t do it.”

Sounds cliche but its the absolute truth. I ignored that voice and kept going. Posted what I’d written even though I didn’t like it very much because my dislikes can’t be trusted when that voice is in my head.

It reminded me of my life before kids when I accepted a director level position with the county. It was the biggest and toughest job I’d ever taken on and while I had incredible support from my bosses and an amazing staff, lots of doubts and fears were expressed from all sides, especially in my first six months. One particularly tough day after work I was telling my husband about it and he said,

“Quit worrying about what other people think and do your job.”

Such a short and simple phrase but it was earth-shaking for me. He got right to the heart of it in just 11 words. I had the knowledge and experience to do what needed to be done, but when others around me got scared or upset I’d begin to question every little thing, put off decisions I knew were right, and generally freeze up in fear.

I wrote those words on a post it note and stuck it to the bottom of my computer monitor where I could see them every day and recite them in my mind like a mantra whenever I needed them.

I’ve started to take my own writing seriously then quit almost immediately more times than I can count over the past decade. But yesterday, when those doubts and fears rose up in my mind, I did exactly what I promised myself I would do this time–I kept going.

Just like that director job, this one is going to be tough some days. I’ll have doubts, I’ll make mistakes, not everything I put out there is going to be well-received, and my worst critic is always going to be that part of myself that just isn’t sure. So, I rewrote my husband’s words on a new note to keep handy, pressed onward, and made it through my first day of almost, but not quite, crippling self-doubt.

Whatever it is you truly want to do or be in this life, odds are good you’re going to run into obstacles along the way, odds are even better that the biggest, most challenging obstacle to overcome is going to be yourself. Quit worrying about what other people think and do your job. And if you can’t quit worrying about what other people think, do your job anyway. There’s only one way to get where you want to be: keep going.

Things to Do and Be

I was inspired by a particularly brave thirty-something whom I dearly love and deeply admire to write a list of things I want to do and be but am afraid to try or there are obstacles in the way that seem insurmountable.

  1. Grow and tend my own herbs and vegetables.  (We bought seeds yesterday!)
  2. Have a regular yoga/mediation practice.
  3. Leave the country for a family vacation.
  4. Take some of the incredible love my sweet Sunshine has brought us and reinvest it in our marriage in new ways that better fit who and where we are in life now.
  5. Learn to swing and ballroom dance.
  6. Ride Daisy (and not just in the paddock or round pen).
  7. Become an active member of this lovely town and community.
  8. Publish

There they are.  Eight things I badly want to do and be.

I am afraid I will fail.

Actually, I’m pretty confident I will fail.  And just as confident that I can dust off and try again.  I’ve failed before; I know the drill.  After all, nothing ventured, nothing gained, right?  : )

What are you afraid to try?  What do you want that, in this moment, seems impossible?  And what are you going to do about it?

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